A smile

I saw a smile!  When I returned to RMH for lunch with Graham, I told him that Josiah had smiled.  He said that he'd been praying I would get a smile.  That was a nice gift.

Well, Josiah is scheduled for surgery tomorrow (Wednesday) at 12:00.  We'll meet with the surgeon sometime in the morning and sign consent forms. 

Josiah had two or three episodes today (I have now heard them referred to as "tet spells".)  One of his heart medications changed due to the surgery so he needed an IV line put in his foot.  His white blood cell count was a little high this morning but there were no other indications of an infection.  They still don't know why his sugar is low and it may take a while to get some of the test results but this doesn't affect his surgery.    

My friend (a pastor's wife) came to see Josiah this morning.  She anointed him with oil and prayed for him.

The Hilton Hotel served an amazing meal at RMH tonight, including delicious cheesecake for dessert.  We were chatting with one of the volunteers who said that all the Hilton hotels throughout the world were challenged to do something this week to show support for youth.  Thank you Hilton Hotels!  

One of our weekend nurses suggested that we hold Josiah before the surgery.  We went in this evening and we were both able to hold him.  I asked if they had a pillow we could use so that he would be more comfortable.  The RT said that pillows were hard to come by but she would get some blankets.  She went to the linen closet and there was a pillow waiting for her.  She said that never happens.  Another gift.  We were told that Josiah would be completely sedated before we held him to try to prevent another tet spell.  We watched the nurse give him his sedative but he was awake the whole time we held him.  Another gift.   

It's time for sleep.  Thanks so much for keeping us all in your prayers.

Blessings,

Elizabeth