Josiah was extubated around 4:00 this afternoon. He was able to tolerate just having his head in an oxygen tent for a while but then his breathing became more congested and laboured so he was switched to VPAP (variable positive airway pressure machine). This looks like a little mask over his nose with straps around his head to keep it in place. He wasn't too impressed with all the suctioning he needed so his blood pressure was high for a while. He was sleeping when I left him at 7:00 (shift change).
He's going to get his pace wires out tomorrow. They've also put in a requisition for a PICC line in case we need it. It sounds like they may stop his heparin tomorrow and start his twice daily injections that replace the heparin. These are injections that we will need to give him at home when we leave. He'll need these as long as he has the shunt.
Someone from neurology should come and see Josiah this week in order to put a plan in place for neurological assessment including an MRI.
I've been reading No Compromise: The Life Story of Keith Green on Graham's iPod while I pump. I'm listening to his song, "Song for Josiah" while I type.
I grieve for the parents of Baby Angelo. I believe he passed away. Please pray for his family.
Thank you for all your prayers!
Blessings,
Elizabeth
Elizabeth, your strength is amazing! To speak so clearly of what is taking pace is incredible. I am sure it isn't easy to write some days. We are following your updates and it is great to know what to be praying for! Praise the lord for all that is happening! I was reading the "herrle" blog tonight and he shared this link, which I ave never seen...perhaps you have, but if not...it is worth it! Many blessings to you!
ReplyDeletehttp://www.youtube.com/watch?v=yX_7j32zgNw&feature=player_detailpage
Andrea
hello Elizabeth and Graham,
ReplyDeletemy thoughts and prayers are with baby Angelo's parents,
relations, all who looked after him during his short life on earth, and all others who are sad. I am praying in the name of Jesus, that God will give comfort, peace and serenity, and the beautiful memories of Angelo provide solace. May baby Angelo’s parents know, with assurance, that they will meet him again in heaven if they have accepted or will accept Jesus who died for us all and rose again, as their Lord and Saviour.
The Lord is nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit. Psalm 34:18.
Thank God for Josiah’s ability to cope with adjustments. In the name of Jesus, he feels at ease and breathes well. Josiah relaxes as his lungs become clear, and he is on his way to becoming a healthy boy.
Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God. 2nd Corinthians 1 v 3 & 4.
Love and prayers from your auntie Julia.
I'm just thinking of how much God loves Josiah and how much He cares for you (so very evident in your strength and wisdom)and all of your family. Continuing to pray each day. J. E.
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