I'm typing this in the washroom as Isaac is sleeping in the main room and the lights are off. Graham and Isaac arrived around 9:00 PM. Tonight was the first time we were able to get Isaac from the car straight to the bed without a long wakeful period. His eyes were only open for a few moments. He's usually a boy on the go so I love carrying him in that semi-asleep state when he snuggles into me.
Graham went to park the car at SickKids and then he'll sit with Josiah a while before walking back here. I suggested that he give Josiah a mouth swab if he's awake. This is Josiah's one treat so I love to give these to him. It's a little pink sponge on the end of a lollipop stick. I immerse it in water and put it in his mouth and he loves to bite it with his gums. It's nice to feel like I bring him a little bit of pleasure.
Josiah had his head MRI done today and it went well though I don't expect the results until next week. I saw Josiah's cardiologist the other day and he said I should take the results with a grain of salt as they can't predict future abilities. There were a few times today when Josiah had his eyes wide open today but I still can't say that he's looked at me and engaged me or looked at me the way he used to. I'm sorry to say that I spent some time feeling sad about potential results instead of just waiting and trusting and just dealing with things as they happen.
The lovely chaplain dropped by this afternoon. I told him that I didn't know if I would get to take home the boy I fell in love with over four months, or if I would need to take home a different boy and fall in love with him. Well, the song we've sung to him since his birth starts with, "We'll love you forever" and we certainly will. I'm someone who needs closure. I like to say and wave good-bye and blow kisses. If we find out that Josiah has changed, it's like I didn't get to say good-bye. I want to see that same beautiful smile ....
Josiah is being weaned of his morphine and diazepam on alternate days. I would really like him to be weaned as much as possible before we head to the ward. The plan is to try to extubate Josiah tomorrow morning. During rounds the fellow suggested that we could extubate tonight but the staff physician looked at my face and said it could wait until the morning.
I watched the nurse give Josiah his enoxparin shot tonight. She said I would be welcome to try to give the injections when I want. I forgot to bring back some needles. She suggested I could practice on an orange.
I learned tonight that Josiah is actually on three different antibiotics. His chest x-ray looks better than it did a couple of days ago. The physio is helping.
We're going to have a great weekend together. Josiah's room and the whole unit is very busy right now so I'm not sure if we'll be able to get Isaac in to see Josiah. Thank you so much for all your support and prayers. We are held safely in God's arms of love. I don't want to think what this would be like without Jesus.
Blessings,
Elizabeth
Isaiah 26:3 "You will keep in perfect peace, whose mind is stayed on You, because he trusts in You."
hello Elizabeth and Graham,
ReplyDeletein the wonderful name of Jesus, the name above every name, the King of Kings and Lord of Lords , to whom one day everyone will bow down , your darling son Josiah will be smiling to you as he is cosy in your arms. As the medications are reduced, Josiah will be more aware. His lungs will be clear of secretions and he will be able to breathe deeply in a most relaxed manner. His heart will be functioning excellently as will his brain, organs and all his body.
Wherefore God also hath highly exalted Him, and given Him a name which is above every name; That at the name of Jesus every knee should bow, of things in heaven, and things in earth, and things under the earth; And that every tongue should confess that Jesus Christ is Lord, to the glory of God the Father. Philippians 2 verses 9, 10 and 11.
Saying with a loud voice, Worthy is the lamb that was slain to receive power, and riches, and wisdom, and strength, and honour, and glory and blessing. And every creature which is in heaven, and on the earth, and under the earth, and such as are in the sea, and all that are in them, heard I saying, Blessing and honour and glory, and power, be unto Him that sitteth upon the throne, and unto the Lamb for ever and ever. Revelation 5 verses 12 & 13.
I pray in the name of Jesus, that gorgeous Isaac will act more grown up now, as he is the older brother and enjoy sleeping a good nights sleep in his own bed ( even if it is the novelty of a mattress on the floor at weekends in Ronald McDonald House). In the name of Jesus, Isaac and Josiah will be reunited soon and Isaac will take pleasure in helping to look after Josiah until they are able to play together. In the name of Jesus you will all have a reassuring, happy, restful and rejuvenating weekend together.
Your pleasing meaningful card, touching letter and delightful photographs arrived this morning. You are so kind to take the time in your very, very, busy schedule to write to me and post the letter. I thank you so much, as it was and is so joyous to receive. There is a glow of unity in the appealing photograph of the four of you leaning gently towards each other , which was taken in June. In the photograph of himself , adorable Josiah looks so thoughtful with his large expressive eyes. In the name of Jesus, Josiah will soon be able to convey happiness through his eyes, as he knows that his body is healed and is in good working order and he has a lot to be pleased about, as his body in now comfortable and healthy. I thank the Holy Spirit as He protects, comforts, guides and strengthens you all, and the doctors, nurses, physiotherapists, and the hospital staff always. I give God the glory.
with prayers, affection, and continued admiration for you all, from your auntie Julia.
(trying out the comment section here)
ReplyDeleteI continue to pray for each one of you and look forward to visiting again soon.
Love,
Khun Pu
My heart and prayers reach out to you .We are trusting God. He works in ways which we may never undestand but bottom line He is good and faithful and always has a way of working ALL things together for our good and for His glory.
ReplyDeleteI know who Khun Pu is too! ha!ha!
Love Aunt Doris
Amanda and I are praying for you Josiah. In God we trust.
ReplyDelete