Josiah had a relatively busy day today but managed to squeeze in a number of good snoozes. Graham was able to take him for a couple stroller rides around the fourth floor which Josiah enjoyed. In the evening we gave Josiah a quick bath, which wasn't as enjoyable as a stroller ride. Thankfully he is now sleeping again while getting his nine o'clock feed.
During rounds this morning the physiotherapist worked with Josiah. He didn't like tummy time as much as on Friday, but it could be because he had just had his 9:00 AM feed. Josiah did a good job at moving his neck, kicking his legs and responding to noises.
Later in the morning the occupational therapist came and worked with Elizabeth. Josiah did very well at tasting some of the fortified rice cereal with formula on the spoon, and was good at sucking his fingers when they put some cereal on his hands. The goal is to reinforce the idea in his mind that eating with his mouth is a positive experience, after so many months of being fed through his NG tube.
The meeting tomorrow will help clarify many things, but it does seem like we will be heading home fairly soon. We have been assembling a list of questions to take with us tomorrow as there is so much to plan for the coming days. As well, over the next few days we will need to clean out our room at RMH so that it is ready for when we do leave Toronto.
Today we had some good cries, which was helpful emotionally, but is also physically taxing. Lord willing Josiah will have a peaceful night so that Elizabeth can get some sleep in the room. Thankfully the nurse tonight said he could handle the 3:00 AM feed for Elizabeth so that she could sleep. Graham will head to RMH shortly and get some rest before returning in the morning.
This evening the chaplain came by for a quick visit. He is very good at listening which is helpful when we need someone neutral to vent our frustrations to. Yes, we've known for many months that Josiah is medically complicated. However, everything feels so soon and a bit rushed right now. We are praying for God's strength and wisdom to get through these days.
Thanks so much to everyone who is praying and who has asked others to pray. We are also really humbled by all the cards and gifts of encouragement we have received. It is incredibly strengthening to know we are not facing this alone.
Blessings,
Graham and Elizabeth
Hello Elizabeth and Graham.
ReplyDeletePraise ye the Lord. I will praise the Lord with my whole heart, in the assembly of the upright, and in the congregation. Psalm 111 v 1.
In Jesus’ precious name, one day Josiah will be praising and thanking God.
Congratulations Josiah on being 7 months old today. Good for you. May God grant you a wonderful day, and may you bring joy to your mummy and daddy.
Ye are blessed of the Lord which made heaven and earth. Psalm 115 v 15.
Our loving Heavenly Father, in the name of Jesus our Saviour, and in the power of the Holy Spirit, in the meeting today, you will be alert and feel secure to listen, ask your questions, put forward your thoughts, and discuss Josiah in depth. You will then be more informed and be reassured that you will be staying in your hospital room until Josiah has made further progress and you are confident before returning home. God grant all the medical people, therapists and yourselves wisdom, understanding, strength, and knowledge that God is the ultimate healer.
When wisdom entereth into thine heart, and knowledge is pleasant unto thy soul;
Discretion shall preserve thee, understanding shall keep thee. Proverbs 2 verses 10 & 11.
Let the word of Christ dwell in you richly in all wisdom; teaching and admonishing one another in psalms and hymns and spiritual songs, singing with grace in your hearts to the Lord.
And whatsoever ye do in word or deed, do all in the name of the Lord Jesus, giving thanks to God and the Father by Him.
Colossians 3 verses 16 & 17.
Dear Heavenly Father, we are expecting your miracle of divine and complete healing in Josiah. Grow mighty life into his heart, lungs, central nervous system, blood vessels, immune system, muscles and every organ and cell of his body, as he is surrounded by the love, peace and power of the Holy Spirit. We gratefully thank you God for Josiah’s wellbeing so far, and eagerly await vast improvements as we trust in you.
Saying, Amen: Blessing and glory, and wisdom, and thanksgiving, and honour, and power, and might, be unto our God for ever and ever. Amen. Revelation 7 v 12.
Love and prayers from your auntie Julia.