The swing is for Baby

Isaac fell asleep easily tonight.  We've instituted a new rule:  no wrestling with mommy right before bedtime.  I'm not sure what I was thinking yesterday apart from thoroughly enjoying him jumping onto me and laughing.  It makes me laugh just thinking about it.

This morning Isaac kept calling mommy and then daddy from the living room.  I have been trying to teach him to come and find us rather than yelling our names (usually we are within sight of him when he's yelling).  I was holding Josiah so I told Isaac to come and find me.  He kept yelling so I finally came out and found him sideways on the baby swing that was swinging very fast.  I think he was a little scared but certainly not petrified.  I saved him and hugged him and kissed him and then we both had a good laugh.  I'm actually quite impressed that he was able to turn it on and climb onto it.  The swing is unplugged and Isaac knows it's for "Baby".  I will try to respond more promptly when he calls.   

Josiah had some nice play times today.  Here's a video that Grandpa Faulkner took.  I was sleeping when this was taken and I think he looks better than he did all day.  Grandpa therapy does wonders.   

   

The nights are a little blurry for me.  Josiah keeps waking up and crying from time to time.  It's great that it doesn't take long for him to settle but it disrupts our sleep and usually one of us ends up just staying in his room.  I think it seems like he's in somewhat of a dream state when he's crying.  I hope he's not having bad dreams.  With the shift nursing here during the day, both Graham and I are able to find time to nap so we really don't feel exhausted most of the time.  It's nice when Isaac wakes up after Josiah's 6:00 feed.  He's done this once so far. 

We gave Josiah a stroller ride today in the house and he seemed to enjoy it.  He likes to look at everything as long as we keep him moving.  He's not a fan of doing his exercises so it's a little hard for me to know how much to challenge him in terms of tummy time, etc.  He is pulling his legs up and kicking them more which is nice to see.     

We had a good visit with our amazing case manager and nurse practitioner today.  KidsAbility had called this week regarding our referral but our case manager said Josiah should just stay in the home as opposed to doing outpatient appointments so if we need KidsAbility at a later date, CCAC will refer us then.  What an incredible blessing this is to us!

They reminded us that we have access to 24-7 nursing so if we ever have a question, they are available.  We also feel better knowing the process if God were to call Josiah suddenly.  We wouldn't need to go to the hospital at all.  They also encouraged us to give morphine whenever we think it could help Josiah. 

I just gave Josiah his 9:00 meds and feed.  He slept through it and even smiled in his sleep as he felt the meds go down his tube.  He doesn't always like the feel of the cold medications.  I was thinking how I was once hopeful that we would leave the hospital without an NG tube.  How horrible it would be to have to give all of these medications orally.

We were blessed with visits from all of the grandparents today.  We were also blessed with a delicious supper tonight.   

Thanks for all the prayer support!  It's always great to hear that people are praying for us.  God is giving us His peace.

Blessings,

Elizabeth