I awoke to the sound of Isaac falling out of bed. Thankfully the pillow fell first as the flooring is hard. He only cried for a moment after I picked him off the floor and gave him a hug and then he immediately pointed to the mattress on the floor, deciding that it would be a better place to lay his head. He was awake for about an hour before he went back to sleep which was mainly my fault because I wouldn't give him milk. The clock said that it was just after 4:00 AM but I hadn't turned the clock back so I thought it was just after 3:00 AM. I learned later that the clock automatically changed to the correct time so to Isaac's body it was actually after 5:00 AM. Within the time he was awake he had a brief period of hysterics when everything I tried to do was wrong. However, it usually works when I ask him if we should pray to God to ask Him to help Isaac to calm down. As soon as I start to pray he is quiet and then at the end he will say, "Amen." After that he was able to lie down and drink his milk which meant that Mommy could go back to sleep.
We made it to church in time to participate in the singing portion of the worship service. It's great to sing to God in unity with others. Speaking of unity, it's amazing to have so many people from various Christian traditions supporting us. Here is a photo of a Prayer Quilt that was made by members of St. Peter's Lutheran Church in Kitchener, where one of Graham's co-workers attends. It's a beautiful quilt of Noah's Ark that has knotted threads all over it. Each knot represents a prayer that was said for Josiah and as people come and pray for Josiah, they can tie more knots. It's an amazing visual reminder of God's love and His open ears to all of our prayers.
In addition to this amazing gift from Lutherans, we have had prayer and other practical support from the following traditions in alphabetical order: Anglicans, Baptists, Brethren In Christ churches, Catholics, Coptic Christians, Mennonite Brethrens, Pentecostals, and others.
My sister-in-law very kindly stayed with Josiah most of the day. It was great to know that Josiah had someone to cuddle him while we were at church and then eating lunch with Isaac. Josiah enjoyed the company and had quite a good day with just a few fussy times. He is now receiving regular ventolin in a mask to help with his breathing and saturation levels. He was on one and a half liters of oxygen today when we left him. Here is a photo of Josiah receiving developmental physiotherapy on the weekend. It's not his favourite activity.
My other brother and sister-in-law also came to visit today so all six adults and four children (not counting Josiah) were able to be together. It also meant that Graham and I could have a short visit with Josiah together. It was good timing because the nurse practitioner came to speak with us. In order for Josiah to go home, he needs to be able to have feeds and be off his oxygen or at least have stable and low oxygen needs. She thought we might be able to get to our own room this week. We'll see how Josiah is doing tomorrow to determine if we can try some oral feeding or not. While we are well aware that it will be Josiah letting us know when he is ready to the leave the hospital, the nurse thought it was reasonable to think that we might be home by the end of November and sooner if all goes really well but hopefully at least by Christmas. : ) One day at a time.
My brother and sister-in-law brought more cards from church members today. They are so encouraging to read. Thank you!
Here is a video featuring Sara Grove's song, "He's Always Been Faithful." My mother-in-law sang this at our wedding. He has certainly always been faithful and we know He always will be. Today we remember our Little One whom we lost four years ago today in an ectopic pregnancy.
Thank you for your love and prayers!
Blessings,
Elizabeth
P.S. I just called 4D and found out that one his CCCU nurses is his nurse tonight. Yeay!
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