Pinker

Josiah had a good day today.  He was pinker.  Yesterday was the first time I looked at him since he's been feeling better and I noticed how blue his skin looks.  He had better sats today and he went down from 2L/min of oxygen to 0.5L/min of oxygen. 

Josiah slept a lot today and was also uncharacteristically calm.  His hearing test had to be cut short and is rescheduled for next week.  There may be some hearing differences in his left ear but she thought it was something that he would outgrow.  The previous test showed that Josiah had good hearing in his right ear so we praise God for that. 

I may have mentioned a family here whose daughter is waiting for a bone marrow transplant.  When I arrived back at RMH tonight, they told me the exciting news that a donor has been found!  The transplant won't take place until January.  They are thanking God for this wonderful gift!  

Josiah wore a sleeper today!  It was size 9 months but it seemed a little snug.  Grandma is bringing more from home tomorrow.  It was nice to see him in clothes again. 

God answered an unspoken prayer today.  I had been wondering if we'd see one of the nurses we really enjoyed in April.  She's one of the charge nurses and she did Josiah's carseat test in April.  I walked into Josiah's room this morning to found her as his nurse for today and tomorrow.  I haven't been doing Josiah's enox shots but tonight she passed me the needle and said it was the perfect time to practice (on Josiah).  We were both surprised at how well it went (after I finished my swallowing and aiming routine).

Josiah's heart rate is lower than in used to be but the doctors are assuming it's due to his medication and it's a good thing.  It's been around 104 bpm when he is sleeping and around 110 when awake.  His heart rate doesn't change much when he is angry due to his medicine.    

The OT assessed Josiah as we attempted an oral feed with a bottle for his 3:00 feed.  She was surprised that he didn't gag on it.  He gnaws on the bottle nipple so he barely drank any milk.  She said we might try a spoon feed to see what he does.

It looks like we will probably go to our own room tomorrow or Thursday.  It's clear that I do not have to be there 24-7 so I'll probably sleep at RMH on the weekend while Graham and Isaac are here.  Isaac will be allowed in Josiah's room if he's feeling well.  

I had a nice chat with another heart mom today at the hospital and another chat tonight with the mom of a girl with leukemia. 

Thanks to Oxford Properties Group for an amazing dinner tonight.  It's time to go to sleep.  Thank you for your prayers!  There are a lot of Christians here so it's nice to be able to share the daily good news and thank God together.

Blessings,

Elizabeth