Last night was a rough night with Josiah. He was very irritable and none of us had much sleep. At around 4:00 AM he desatted again and we decided to start morphine and later asked for a dose of chloral. We called family members in the morning and by the end of the day we had seen all of our immediate family living in Ontario. It was nice to be together. Our pastor and his wife also blessed us with a visit.
We had lots of questions and confusion in the morning but we felt much better after meeting with Palliative Care. The earliest we could leave SickKids to take Josiah home would be Monday if everything works out.
Josiah had a good afternoon. He actually ended up doing physio and he went for a long stroller ride in the hallways with his relatives. We took lots of photos. He is now on a morphine pump and that along with oxygen should keep him comfortable. He also has a big bed now so that's where Mommy will be sleeping tonight. Daddy will be on the couch in the room.
Isaac was able to spend some time with his little brother today. He said good-bye to Josiah when he left.
It's time to go to sleep. It's been both a good and hard day today. It's great to know that we can keep Josiah comfortable. It's time for some snuggles with him. We thank God for answered questions and His peace today.
Blessings,
Elizabeth and Graham
My thoughts and prayers have been with you guys throughout this journey, and especially today. Thank you for bringing us into each day's joy and struggles. May God continue to strengthen you, give you peace, and allow you to enjoy each precious moment together.
ReplyDeleteDear Elizabeth and Graham.
ReplyDeleteAnd to know the love of Christ, which passeth knowledge, that ye might be filled with all the fullness of God. Ephesians 3 v 19.
Rejoicing in hope; patient in tribulation; continuing instant in prayer. Romans 12 v 12.
So we thy people and sheep of thy pasture will give Thee thanks for ever: we will shew forth Thy praise to all generations. Psalm 79 v 13.
When thou liest down, thou shalt not be afraid: yea, thou shalt lie down and thy sleep shalt be sweet. Romans 3 v 24.
I pray O Heavenly Father, in Jesus’ name and in the power of the Holy Spirit, for love, comfort, ease and healing for darling infant, Josiah Nathanael Gabriel Faulkner. We would love a miracle O God, that Josiah would be completely healed, if it is your will. Josiah is in your hands O God. Josiah, your name in Hebrew means the Lord Saves. Nathanael means gift of God, and Gabriel means devoted to God. Josiah, you have touched all our hearts, and may many people accept Jesus into their heart as their Saviour and Lord. May you all be sustained in the love of God and be helped by everyone you come in contact with. Dear God, guide and uplift all the hospital staff. Thank you God.
Lord, I would own Thy tender care,
And all Thy love to me;
The milk I’m given, the clothes I wear,
Are all bestowed by Thee.
’Tis Thou preservest me from death
And dangers every hour;
I cannot draw another breath
Unless Thou give me power.
Kind angels guard me every night,
As round my bed they stay:
Nor am I absent from Thy sight
In darkness or by day.
My health, and friends, and parents dear,
To me by God are giv’n;
I have not any blessing here
But what is sent from Heav’n.
Such goodness, Lord, and constant care
I never can repay;
But may it be my daily prayer,
To love Thee and obey.
Grace be with you, mercy and peace, from God the father, and from the Lord Jesus Christ, the Son of the Father, in truth and love. 2nd John 1 v 3.
love from your auntie Julia.
Dear Friends,
ReplyDeleteOur hearts and prayers are with you.
"Now may the Lord of peace himself give you his peace at all times and in every situation. The Lord be with you all."
2 Thessalonians 3:16
Anthony and Ruth
Dear Faulkners,
ReplyDeleteOur thoughts are continually drifting towards you throughout the day and we are constantly asking God to guide you and strengthen you in His way.
We are always here if you need us.
christine
Dear Elizabeth and Graham,
ReplyDeleteI have been reading your blog since leaving Toronto, and my mother in law shared with me the email you sent her. You and your boys have constantly been in my prayers, my mom's bible study group has also been praying for you. You have been an amazing Christian example, your faithfulness is inspiring.
I pray for peace for you, and that you feel God's warm presence while you make hard decisions, and prepare for life at home.
Elisabeth Franz-Warkentin ( from Winnipeg)
Praying tonight!!
ReplyDelete