A better day

Today was a pretty good day for Josiah.  He woke up coughing this morning but he didn't cough much throughout the day.  We've been giving him two mL of morphine with his feeds the last two days (from 6AM to 6PM).

The OT and speech and language pathologist were here today.  We tried Josiah in an exersaucer and he seemed interested though he didn't last there long.  We'll keep trying for a few minutes a couple of times a day.  If he can tolerate it, it should also help increase his core strength.  He has a pillow under his feet and blankets around his upper body to help with stability.

We also tried giving Josiah a little milk on a spoon.  It seemed like a miniscule amount of milk but he took it happily and swallowed it.  We'll do this a few times a day until he is used to it before adding more milk on the spoon.  

I think we'll try to track Josiah's sleep times to see his patterns so we can work out more of a schedule. This would be helpful for any new nurses. 

I was trying to rock and cuddle Josiah around 4:00 PM.  He wasn't too interested until Grandpa L. showed up for his regular cuddle and prayer time with Josiah.  Josiah contently watched his face and listened to him singing and then fell asleep. 

This evening Josiah decided to keep a soother in his mouth for a while.  He's only ever gnawed on a soother before but this time he actually sucked on it a little and kept it in his mouth.  It's only taken 10 months (probably the time when most people get rid of their soother).  Isaac never had a soother. 

I was extra tired today but I was able to rest due to help from our incredible family members.  Last night I gave Josiah his 12:00 AM feed and then I fell asleep and missed my 12:30 AM alarm and woke up at 1:30 AM and then finished his feed.

Grandma and Grandpa F. came and picked up Isaac today and took him to their home.  He was happy to go.  We saw him tonight on FaceTime and he had enjoyed a great afternoon of playing.

We had a delicious dinner tonight.  Friends from church brought it and we had dinner together.  It was so lovely to have a visit with them. 

It's time to say goodnight.  Thank you so much for your prayers and support!

Blessings,

Elizabeth

Isaiah 50:10
Who among you fears the Lord and obeys his servant?  If you are walking in darkness, without a ray of light, trust in the Lord and rely on your God.