Thursday, 7 February 2013

The greatest laughs

The OT and the speech and language pathologist were here today.  Josiah didn't have oral feeds for a week due to the increased chance of aspiration while he was sick.  I gave him prunes to start off with something he likes and they were very happy to see Josiah so eager.  He looks for the spoon and grabs it and gets it into his mouth while I get the next spoon ready.  He then drops the first spoon and takes the next one. 

I asked them about trying milk orally.  They suggested waiting until they return in two weeks and then give him milk on a spoon and then from a medicine cup and hopefully eventually a sippy cup.  We'll see if I'm patient enough to wait two weeks.  They said it would probably be a long process.

I also asked about speech and the speech and language pathologist suggested a few things including starting to use signs with Josiah.  I did that with Isaac but I hadn't thought to start them with Josiah.  It's nice to have things to try and goals to attain.      

Josiah didn't have a good afternoon but tonight I was kissing and making loud noises on his tummy and he had the greatest laughs with his mouth wide open and his eyes dancing.  I had to call Graham and Isaac to come and see. 

Isaac had fun playing at Grandma and Grandpa's house today. 

I'm hoping for more laughter and less crying tomorrow.  I had to change Josiah's face tapes twice today after he pulled off his tapes.  He would have pulled out his NG tube both times if the nurse hadn't been there to grab his hand when he pulled off his tapes.  We keep trying new things with the tapes so we continue to find out what doesn't work and that's good to know.  His cheeks look so red whenever the tapes come off.  The nurse said she'd seen a picture of an NG tube taped up onto the nose and up to the forehead.  I expect that would look ridiculous but I may get desperate.

Thank you for your love and prayers!

Blessings,

Elizabeth

Proverbs 3:5-6
Trust in the Lord with all your heart; do not depend on your own understanding.  Seek his will in all you do, and he will show you which path to take. 

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