We're thanking God for BMs today! In case you were wondering, Josiah had three of them. He went four days without having any. We've changed our system slightly to help prevent him missing his PEG again.
The visiting nurse was here today. She said that Josiah's lungs sound clear. He was still coughing today from time to time. She suspects that Josiah's veins are narrowing. He is arching his back more.
Isaac and I went to the library program today. It's nice to be there with him. Our oxygen tanks were delivered today.
It's always interesting to look at the dates written on Josiah's milk containers. We just started our last box yesterday so we'll start mixing it with formula to help the transition. Today I noticed the date of his first surgery with the time of 6:30 AM. We arrived early at the hospital that day and then I pumped before he was taken for his surgery.
I'll say goodnight now. Thanks so much for your continued prayers and support. We're so thankful that God promises to never leave us or forsake us. I read tonight that when the disease (pulmonary vein stenosis) progresses, one of the symptoms can be pain in the chest. That's just one of the bad symptoms but I'm praying that Josiah would be free from chest pain. I'm very thankful he's sleeping through the night.
Blessings,
Elizabeth
2 Peter 1:3
By his divine power, God has given us everything we need for living a godly life. We have received all of this by coming to know him, the one who called us to himself by means of his marvelous glory and excellence.
We believe that God can do anything that we ask or can imagine and so.....please God in your way with your healing power, heal Josiah's pulmonary vein stenosis with your Almighty strength and power. Bless his family with your love and wisdom this day. Amen. Much love.
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