Breakfast date

As Isaac was enjoying time with his cousins this morning, Graham and I were able to leave the house for a few hours together while the nurse was here watching Josiah.  We had a nice breakfast and then went to a couple of stores.  It was definitely a treat!

We picked up a digital alarm clock for Isaac's room.  We're hoping to teach him to go back to sleep if the first number is not a 6 or a 7.  We are ever hopeful.

Josiah had a better day today.  He did gag a little one time which was a little disconcerting.  He also had some great smiles.  At one time when he was crying today, Isaac came in and tried to console Josiah, mimicking what I said and did. 

Our biggest needs in regards to Josiah are his nights and his face tapes.  The last several nights have not been good.  He has woken up often and either been irritable or wide awake.  At times he'll fall back to sleep easily, only to wake up a few minutes later.  We need to find tapes that don't bother Josiah's skin.  His cheeks are very red.  It also needs to be a tape that Josiah cannot remove easily as he is quite skilled in that area.  We've had some new suggestions so we are hoping something works. 

Josiah often appears to be scratching his face.  We are unsure if this is due to his morphine or just due to the irritation of the nose prongs and the tapes on his face.  The socks we put on his hands help but even with his socks on he would have pulled out his NG tube today had I not been there to grab him.  His perseverance is impressive! 

We are without our sat monitor tonight as all of our infant sensors no longer work.  We'll order more on Monday.  Perhaps this will result in all of us having more sleep. 

Thank you so much for all of your prayers and support and kind words.  We appreciate you so much!

Blessings,

Elizabeth

Psalm 3:3
But you, O Lord, are a shield around me; you are my glory, the one who holds my head high.