We gave less morphine today but Josiah was still a very sleepy boy. He seemed to sleep most of the day. It's nice to see him content but Graham reminded me that we were told he would become more sleepy as the disease progresses. He was also up a lot last night. I went in around 2:30 AM and changed his diaper but he wasn't going back to sleep. I gave him morphine at 4:00 AM and it kicked in a while later but Isaac woke shortly before 5:00 AM. That early morning dose was the only extra dose that we gave him today.
We woke Josiah up when the dietitian came to weigh him and we woke him when the OT and Speech and Language Pathologist came to observe him taste test some squash. He weighed 8.03 Kg but I suspect he'll lose weight as we've decreased his feeds to see if it helps with his fussiness. I just want to find the perfect formula ... and make it all better.
He didn't mind the taste of the squash and he lasted a long time in the chair but he certainly didn't gobble anything down or open his mouth wide.
Graham and I gave him a bath. We're using our wonderful whale baby bath and he doesn't mind the washing process though he's not a fan of drying off. He enjoyed his new tummy time toy we got on Kijiji and I think he held up his head longer to look at the moving pictures.
I went out for an hour to look for a couple of items for Josiah. I just want to buy him the moon - something that will bring him joy and a sparkle in his eye.
The other day Graham's cousin brought over a stuffed puppy that sings a Christmas rendition of "You Make Me Want to Shout." You can picture the Faulkners dancing to this music in the kitchen. Isaac has some sweet moves.
Thank you for you support and prayers. God provides our daily bread in so many ways. We are well aware that there is so much heartache in this world. We are so blessed to have this time to spend with our sons.
Blessings,
Elizabeth
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