Josiah had another good night last night. Isaac enjoyed cutting out sugar cookies this morning with Mommy and Grandpa. We didn't get around to decorating them as we were interrupted by the nurse's arrival. I was practising my heplocking skills when the nurse noticed that the fluid I was pulsing in to Josiah's PICC line was weeping out where the line enters his skin. Presumably there is a hole in the line close to the insertion point. I emailed our nurse practitioners at SickKids, called the Palliative Care Team and spoke with a Vascular Access Nurse. The nurse practitioner spoke with three cardiologists and the decision was made that we should go to SickKids on Monday to get the PICC line removed. We need to be there at 10:00 AM. This was not our hope for Christmas Eve but it will be nice to see our nurse practitioner again and I'm glad we're able to get this done at SickKids. There is low risk in this procedure. The end of the line is sitting in a clot but the clot is old so the expectation is that the clot won't move. That's what we'll be praying for.
Our nurse practitioner from McMaster called today just to let us know she's been thinking of us. We've been blessed with such amazing care.
A neighbour came by this afternoon with gifts for the boys.
Graham was at the grocery store when I heard the doorbell at 10:00 PM. I immediately thought, "Why is Graham using the doorbell?" I looked out the peephole but I couldn't see anyone and I called out but no one answered so I didn't answer the door. A little while later I heard someone knock on the door. When I arrived at the door I could see someone run by our front window. I called out again but no one answered so I didn't open the door. I assumed some youth had run out of fun things to do. I called Graham's cell to ask him to use his key when he returned instead of knocking. I heard the garage door when Graham returned so I opened the door and there on the doorstep was a gift for us! So, we'd like to send a big thank-you to whomever left the gift! We have incredible friends.
Our 'Thank you card' list is growing by the day.
It's time for bed. We have a big day tomorrow as we're headed to my brother and sister-in-law's home to celebrate Christmas with my side of the family. Hopefully Josiah enjoys his outing.
Thank you for your prayers and support!
Blessings,
Elizabeth
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