Another outing

Isaac and I ventured over to Grandma and Grandpa's house today for a visit.  A couple of minutes after I left, a friend showed up at our home whom I haven't seen for months.  I look forward to seeing her soon.  While Isaac napped I went to the mall to return a couple of items I bought yesterday.  I had bought a zippered fleece for Josiah but once home I realized that it would be too warm for him (he gets sweaty and clammy very easily) and the hood would get in the way while he was sleeping.  I went through Isaac's old clothes yesterday and realized that Josiah can easily wear button up shirts and thin zippered tops.  Since coming home he's only been in buttoned sleepers as we can put them on and not affect the oxygen tubing and we can easily access his tummy to check pops and his foot for the sat probe at night.  It will be nice to get him out of the sleepers for a change.

It's good to get out of the house but as I drove with Isaac I thought that there should be two children in the car with me.  

I've been trying to get Josiah on his mat between 7:00 and 8:00 in the morning before the nurse arrives.  He's usually awake then and in a relatively good mood.  This tires him out so then he sleeps for a while after that.  He has good mornings but he's often irritable in the afternoon.  We gave him his 6:00 morphine an hour earlier but we probably should have given it to him earlier in the afternoon.  He's been irritable this evening and hard to settle.  We gave him some benadryl but we may need to give him more morphine.  Graham is in with him now while I type this so I'll say goodnight.

Thank you for all your support and your continued prayers.  We appreciate your perseverance in praying for us.      

Blessings,

Elizabeth