There was more snow outside this morning. The ice on the trees looked beautiful. It's gone now.
We gave Josiah extra morphine again today due to his laboured breathing as well as the additional PEG for his bowels and Benadryl for his itchiness, two side effects of the morphine. So today he was extra sleepy but he had lots of cuddles with Mommy and Daddy, Grandma and Grandpa F., and Uncle A. We don't have shift nursing on the weekend but the RN dropped in to see Josiah and heplock his picc line. We were thankful to have grandparents around as they helped with laundry, putting delicious leftovers on the table, and playing with Isaac and Josiah, thus allowing us to have some extra sleep, buy some groceries, and organize a few things.
It's nice to see Josiah calm but I can't stop the voice in my head that says, "A baby shouldn't be in the crib that much ... he shouldn't be watching a dvd in his crib ... he should smile more ... he shouldn't be so tired .... he shouldn't need to work hard to breath ....
Isaac said his full name for the first time today: Isaac Kenneth Russell Faulkner. He also rewarded my potty efforts but as I was clapping to congratulate him he let me know that I should be reading to him instead. Isaac now likes to pose for pictures so Grandma F. said we should call him Isaac Bieber after which he immediately started saying, "Isaac Bieber."
We were blessed with a beautiful gift basket from Grandma F.'s Coffee Break Bible study group. We've had our chocolate fix today!
Isaac will go to church in the morning with Grandma and Grandpa L. and be home for lunch and a nap. While we miss our church family, we are not ready to take Josiah where there are lots of people and we are also not comfortable only having one person with him at home.
We are hoping to visit a photographer's studio in the near future. The photographer volunteers with Now I Lay Me Down to Sleep. We were put in contact with her through the palliative care team.
Good night and thank you for your continued prayers.
Blessings,
Elizabeth and Graham
Hello Elizabeth and Graham.
ReplyDeleteCast thy burden upon the LORD, and He shall sustain thee; He shall never suffer the righteous to be moved.
Psalms 55 v 22.
Now our Lord Jesus Christ Himself, and God, even our Father, which hath loved us, and hath given us everlasting consolation and good hope through grace,
Comfort your hearts, and stablish you in every good word and work.
2nd Thessalonians 2 v 16 & 17.
And we have known and believed the love that God hath to us. God is love; and he that dwelleth in love dwelleth in God, and God in him. 1st.John 4:16.
Josiah Nathanael Gabriel Faulkner is in your hands God. Dear Heavenly Father, in Jesus’ name and in the power of the Holy Spirit, continue to surround him with love, and ease his breathing. Make him feel secure and content, enabling him to convey tenderness to his devoted parents, Isaac, grandparents, nurses and everyone who interacts with him. Please grant Josiah power to feel happy and smile on the day he visits the photographer’s studio and competes with Isaac for the limelight.
Thank you God, and we give You the glory.
love and prayer from your auntie Julia.