A busy day

After leaving RMH this morning, Graham and I went and found a portable DVD player to buy for Josiah.  Graham was completing the purchase when I arrived at Josiah's room.  The staff physician on call (who happens to be the new chief of staff of the CCCU) was at Josiah's bedside.  Josiah had just desatted to the 50s so they made some changes with his ventilator settings and changed some of his medications.  Later in the day he desatted to the 40s a couple of times but he's been behaving well so far for the evening nurse.  The staff physician put him on anti-fungal medication just in case that could be the source of his fevers.  He said he thinks Josiah should have a cardiac catheterization soon so it will be discussed by everyone on Tuesday morning.

It's harder for me to see him in the crib now.  He arches his head back as far as it can go.  The physiotherapist was explaining to me that babies who need more oxygen do this to try to open up the chest and airway as much as possible.  It's the brain's response.  It looks very uncomfortable and certainly isn't the best position for his neck but he just squirms back to it every time he's moved.  Of course, he also has ice on his head and around his body.  He fights during his many suctionings. 

Graham and I went out for lunch and then he waited at RMH for our family while I went to the hospital.  It was a slow day in the room so we were able to have more than two visitors.  My parents, brother and sister-in-law came.  One adult watched the children at RMH and the rest visited with Josiah.  We then had a delicious turkey dinner at RMH that my mom and sister-in-law had prepared.  After that, my nieces opened some gifts as they turn six tomorrow.  We said good-bye and put Isaac to bed on his own single bed.

Graham told me that yesterday he made a pretend dog with his fingers and walked it over to Isaac.  Isaac picked up the dog (Graham's hand) and said, "hug" and gave it a hug.  He is a sweet boy.  

I called the night nurse who said Josiah was sleeping comfortably and had not desatted.  Thankfully we have the same day nurses and night nurse all weekend.  Consistency is great for everyone.

I've been tempted to stop pumping milk but I think I'll aim for six times a day instead of seven.  That should enable me to get a little more sleep.  It would be great to have a long sleep and it would be good to have a big cry.  I may need to watch a sad movie at some point.  I think I'll nap before my final pump tonight.

Thanks for your prayers.  We need them.  We are tired but blessed.  We want God to touch our little boy.  We want him to breath on his own.  We want him to smile.  We do not want him to fear or be in pain.  We want him to know he is safe and he is loved by his family and the God of all wonders. 

Blessings,

Elizabeth