I need to be at the hospital at 7:15 AM tomorrow so I'll be heading to bed early tonight. Josiah is scheduled for the first catheterization of the day which will be followed by his MRI. I heard the risks and signed the consent form this afternoon.
Josiah would not settle last night so he was given extra sedation again. Today he had two desat episodes. The first time he seemed to be resting and then his sats went to the 50s. He came back easily after the nurse bagged him. I was eating my lunch and not at his side during the second episode. The nurse told me that she noticed his feet moving and went over to him and realized that he was very blue even though his sats were reading okay and he was working harder at breathing. She bagged and suctioned him but that wasn't enough. More nurses and the staff physician came, he was put on full ventilation, and he was given adivan. He now has NIRS on his flank which he's had for a week or so. This is new protocol for single ventricle babies. In this episode his NIRS numbers went very low. It was suggested that this may have been pulmonary hypertension or his ventilator tube somehow became obstructed.
There is now a Single Ventricle Team made up of four physicians and two nurse practitioners. A physician and one nurse practitioner do rounds each day for all of the single ventricle kids. My understanding is that a group from SickKids toured a hospital in Milwaukee which has an amazing reputation for treating congenital heart defects. They observed for a week and are now putting some new things in place at SickKids.
I needed new shoes. My old ones have been around for a few years and are showing their age to say the least. Last night Graham said I should buy Merrell shoes. I'm quite frugal but I do want shoes that are good for my feet. To make a long story short, I just happened to find a pair of Merrell shoes today that were mistakenly ticketed for a price that was over 50% off. They honoured the ticketed price. Thank you Lord! That was a wonderful gift.
Please pray for these procedures tomorrow. We want Josiah to be safe from harm during these procedures and we want the doctors to find out what's going on with Josiah. Thank you for your support and prayers!
Blessings,
Elizabeth
Dear Elizabeth,
ReplyDeleteI'll be praying that both you and Josiah have a restful night. And that tomorrow the One who knit Josiah together will stand guard as these procedures are done. Our hearts and prayers are with you. Hugs.