Josiah had ice on his head and body for most of the day but his temperature stayed around 38 degrees. I just spoke with the night nurse and his temperature is currently 39.7 degrees even with drugs and ice and some sedation. As always, more cultures are being sent and more will be sent tomorrow morning.
I met with the thrombosis team today. The ultrasound that was done yesterday did not find anything new. The clot in Josiah's right groin is the same size. They are happy it hasn't grown. He still needs to have the CT venogram on his head but it looks like there is a clot there. There's no rush on the CT venogram as he is already on anticoagulant medication.
Tomorrow Josiah will have an abdominal ultrasound and another echocardiogram. It's nice to be present to hold Josiah's hand and try to keep him calm during these scans.
Apart from his fever Josiah did quite well today until about mid-afternoon when he started to desat. He needed a lot of suctioning though he is able to cough up his secretions. He hates being suctioned. The doctors do not know why he is having fevers.
I'm wondering if Josiah can hear. He was on ECMO once and that can cause hearing loss and one of his current antibiotics can also cause hearing loss. His hearing will be tested before he leaves the hospital. It's sad to think that he could be lying in bed all day and night in silence, not hearing his mommy's voice or the songs I sing or the prayers I pray. I wonder if babies get depressed.
My new neighbour here has a young son who has just been diagnosed with a very aggressive form of cancer. A new dad was celebrating his son's one-week birthday today. His son has encephalitis.
It was a beautiful day today and I was blessed to be able to spend it with Josiah while knowing that Isaac was having fun with Grandma F.
My bed with the clean warm sheets is calling me. Good night and thank you for keeping all of us in your prayers.
Blessings,
Elizabeth
God be with you every single moment. May His angels watch over you and may God keep you informed with wisdom to give you the knowledge to understand each treatment and procedure in order that you will be blessed with peace, hope, love and some joy. J.E.
ReplyDeletePraise God for His answers for each day's treatment. Maybe you would feel better if you do your own hearing test for Josiah. Clap your hands or bend down and speak at the side of his face or turn on the mobile/music? so...we'll pray for good hearing and "no more" to fevers and balance in his levels. i pray that you always sleep well. Tomorrow is a new day and God made it! Graham and Isaac arrive and that must be such a weekly treat! Love, J. E.
If I do not write, please know that we are always following the blog and praying.
Hello Elizabeth and Graham,
ReplyDeleteFor this cause I bow my knees unto the Father of our Lord Jesus Christ,
Of whom the whole family in heaven and earth is named.
That He would grant you, according to the riches of His glory, to be strengthened with might by His Spirit in the inner man;
That Christ may dwell in your hearts by faith; that ye, being rooted and grounded in love,
May be able to comprehend with all saints what is the breadth, and length, and depth, and height;
And to know the love of Christ, which passeth knowledge, that ye might be filled with all the fullness of God.
Now unto him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us.
Unto Him be glory in the church by Christ Jesus throughout all ages, world without end. Amen.
Ephesians 3 verses 14-21.
Be careful for nothing , but in everything by prayer and supplication with thanksgiving let your requests be made known unto God.
And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus.
Philippians 4 verses 6 & 7.
Please God our Father, in Jesus’s name, darling Josiah feels the love of God surrounding him always, and is at ease and comforted by his parents’ touch and the soothing sound of their voices. May Josiah give Grandmother Rita another smile as she sings to him. Grant this O heavenly Father to encourage all, as you continue to strengthen and heal Josiah. Give wisdom to the doctors, normalise Josiah’s temperature as his chest secretions are easily expelled, his blood clots gradually and safely dissolved, his digestion improved and anything else that needs attending to, Please all knowing God in your mercy fix to perfection. Thank you God our Father.
God is always near me,
Hearing what I say;
Knowing all my thoughts and deeds,
All my work and play.
God is always near me,
In the darkest night,
He can see me just the same
As by midday light.
God is always near me,
Though so young and small;
Not a look, or word, or thought,
But God knows it all.
May you have a wonderful day tomorrow with your family and rejoice over evidence of answered prayer.
with a hug from your auntie Julia.