Drinking!

I hope I have not permanently lost any brain cells.  For the second day in a row I forgot that someone was coming and I was sleeping when they arrived!  Wednesday is the day that Isaac's volunteer from Hospice comes in the afternoon.  This time my mother-in-law was not here to wake me and I think my nurse must have thought I needed the sleep.  I didn't get up until half an hour after she arrived!  How embarrassing!  She said she didn't mind at all as she was able to spend time with Josiah and get to know him a little.  She commented on how good he looked.  For the second day in a row I was told about Josiah's long fingers.  I hadn't noticed.  I woke Isaac up and he was quite excited that his volunteer was there. 

These days I usually wake up to Josiah's oximeter going off in the morning.  He likes to pull off his sock in the morning and then pull of the sensor.  This morning he put on his DVD player with his toes as it is attached to the crib rails.  He puts his head as far back as it can go to look for the tubes and wires at the top of his mattress, hoping no doubt that he can reach them.

One time this morning I went into his room to find his nasal prongs out.  He looked so happy so I put the oximeter sensor back on his foot, hoping that his oxygen levels would be alright without the oxygen but it started at 62 and went down from there so I thought I should give him back his oxygen.  I used the opportunity to change his nasal cannulae and tapes.   

Once again, Josiah ate very well all day.   The big excitement for me was that he drank larger amounts from a medicine cup.  He had at least 15 mLs of drinkable yogurt at breakfast and another 25 mLs at both lunch and dinner.  I'm looking forward to him drinking all of his liquids instead of most of them going down his NG tube.  Of course, that would be a lot of work for him.

Every time I look at Josiah now I think that's he's so big.  He just seems to look so much bigger these last few days.  

Josiah will have a non-sedate echocardiogram and a CT scan at SickKids Hospital next Tuesday, June 4.  We'll know the results before we leave the hospital.  I also found out today that he'll need an IV for the CT scan.  I assume they will use it for contrast dye.  When Josiah was rushed to our local hospital at the beginning of this month, they tried to get a line four times but were unsuccessful.  I'm praying it will work the first time.   

I like this quotation that I read tonight:  "Do not look forward to what may happen tomorrow; the same everlasting Father who cares for you today will take care of you tomorrow and every day.  Either He will shield you from suffering, or He will give you unfailing strength to bear it.  Be at peace, then, put aside all anxious thoughts and imaginations, and say continually: 'The Lord is my strength and my shield; my heart has trusted in Him and I am helped.  He is not only with me ... but in me ... and I in Him.'" - St. Francis de Sales

Wow!  If only I knew how incredibly blessed I am ... and lived like it.  I have the opportunity to walk with God every day.

Thank you for your prayers!

Blessings,

Elizabeth

Psalm 63:7
Because you are my help, I sing in the shadow of your wings.