I'm typing this from Josiah's room at McMaster Children's Hospital. We expect this will be our last night. The resident examined him this morning and told me that she couldn't imagine we would be staying. However, at rounds today they discovered that there were still a few things they wanted to do before we left. One of those things was a blood test. We missed the window this morning so it will be done at 11:30 tonight. I'm happy it will be done but I'm not too excited about the potential affect on Josiah's sleep tonight.
He falls asleep much later than usual because there's quite a bit of light in his room. Last night he woke up at midnight and was up until 1:30 and was miserable the whole time. He was up a couple of other times after that. He has long coughing spells and I think he's just having trouble clearing his secretions from the back of his throat. The nurse was lovely. She just felt so bad that there was nothing she could do to help Josiah calm down. She's on again tonight.
I can't wait to have more options for Josiah at home. I'm missing his Bumbo chair and exersaucer and swing and floor mat and numerous toys. Thankfully we had my parents bring his chair so that he could be upright and not always lying down or in our arms.
Graham drove to McDonalds for lunch today for McHappy Day. We found out tonight that my parents also took Isaac there tonight in support of Ronald McDonald House. We had a delicious meal at RMH tonight. I went over and ate while Graham sat with Josiah and then we switched.
I'm going to try to rest now in case I'm up a lot tonight. I imagine I'll be typing from home tomorrow night. I'll be happy for Isaac to have us home. He still loves my hair and when I sing to him before bedtime he's allowed to hold it (not pull it). He told Grandma to "get more hair". I didn't ask if she's planning to grow it longer. :)
We did talk to Isaac over FaceTime a couple of times today and he was able to blow kisses to Josiah as well. He enjoyed going for a walk with the Hospice volunteer today.
Thank you so much for your prayers! He needs to get rid of his cough.
Blessings,
Elizabeth
I look forward to looking out my window and seeing your lights on tomorrow. It looks dark, and rather lonely when you're not home. Hope you sleep well tonight.
ReplyDeleteChrist is risen!
ReplyDeleteWonderful news. Much love.
I am praying for your return today with LESS coughing - please God. Most of all, I am thanking God for His wisdom, as you now know more than you did a wk ago. I am believing that when Josiah gets to move around more that his coughing will become much less.
ReplyDeleteMay this be a day of joy for your family. Much love.