Escape

We escaped the heat and humidity at my parent's home today and I think that's the plan until a reasonable level of comfort is achieved in our home.  Josiah and his nurse hung out in his room which is nice and cool.  He had a good day but I'm sure he's missing his stroller rides. 

I returned home when Isaac started his nap so that I could do some errands.  Today was the first time our nurse heard the word errand.  He also learned the word puppet after he told me how much Josiah loved the green dragon in the bath.  He said that Josiah was almost jumping out of the bath he was so excited!  That's always nice to hear. 

We had a new nurse tonight.  There was a meeting in our home which Graham was part of so it helped to have an extra set of hands while I put Isaac to bed. 

We were excited to learn today that Graham's younger brother and his family will be flying in on Sunday night.  We can't wait to see them and Isaac is looking forward to playing with his cousins. 

I'm reading a book about loss that a friend recommended.  It compares permanent losses to those that are temporary or seem to be, saying, "You have a situation in which there is no closure.  Thus there is a recurring sense of loss."  My friend, who has experienced great loss, said that I have experienced losses with Josiah.  I haven't thought about it like that before, though I see that it is true.  I heard the word disability in reference to Josiah a week or so ago and I haven't thought about Josiah like that either, though I clearly have a 14-month old who cannot crawl or even drink his feeds and would not live without a tube for medicine and another for oxygen.  It seems quite reasonable that it would be good for me to process some of this.  Perhaps the book will help.

I also see all that I have that I might not have and for that I am thankful.

I called the pharmacy this morning to order some drugs.  I asked about the fax from the doctor but it hadn't arrived so I called the doctor's office again and left a message because it was closed until 12:00.  I called later and the doctor wouldn't be back until Wednesday but the receptionist called the pharmacy with the doctor's verbal order for a two-week supply.  I then called the pharmacy again to also order some other medicines and discovered that I needed our doctor to okay another drug so that will happen on Wednesday I hope and then we can pick up the drugs on Thursday.   

Thanks for your prayers!

Blessings,

Elizabeth

Proverbs 24:26
An honest answer is like a kiss of friendship.