Pet Peeve: Walking into Josiah's room at 10:40 PM and finding that his feed stopped working, probably about an hour before.
It was a bit of a crazy day following up on various things to do with Josiah, all from the comfort of my home. I don't have time to recount it now but it had to do with NG tubes and drug schedules, and pediasure faxes, and blood pressure monitoring, and nursing schedules, etc. Thankfully my parents dropped by and then Graham's parents were here until Isaac went to bed and then my mom stayed to be with Isaac while Graham and I were out at separate meetings tonight. Our awesome nurse came from 10:00 AM until 9:30 PM. He'll be back here at 7:30 AM tomorrow. I think God is showing me that there are very legitimate reasons why I get tired and it's not all mental stress.
I just looked at my calendar and it says that summer begins tomorrow. That's exciting! It's definitely a reason to smile.
Isaac is too cute sometimes. He loves to dance, especially in the evening and after his bath. He also often gives names to his dances. Tonight he was doing the Raccoon Dance. He came up to Grandpa F. who was sitting on the couch and gave him his hand and said he'd help him (with the dance, as I understood the story). He was showing Grandpa some pretty awesome moves - though I am happily very biased about his two year old talents.
He's a little less cute when he's defying me loudly with his big blue eyes. He told me today that he didn't love me (I think I wanted him to go to the potty or something terrible like that) but I was quick to let him know that he does love me very much. He later told me a lovely secret that confirmed his love. :)
He was watching part of a DVD about instruments today and he told me that it looked nice and would like to do it someday. I think he liked various instruments but told me he'd like to play the drums. We'll see what happens.
I put on a video for Isaac in the living room when we are doing something to Josiah that will look unkind and make Josiah scream and cry and there is no one else to be with Isaac. I don't want Isaac to be watching us or concentrating on Josiah's cries. We did this on Monday when we inserted Josiah's NG tube and I did this again this morning when we needed to suction Josiah's nose. It's not nice for him. We need to remove his oxygen tube briefly while we do this and then put a tube up his nose a little ways in order to clear it out.
Isaac's excitement for the day was going to the park with Grandpa and watching rabbits jump on Youtube. Who knew that rabbits have jumping competitions like horses?
Josiah had a pretty good day today. He enjoyed his walk outside and gave away some precious smiles. His nose sounded quite congested this morning and he was coughing a little but he seemed better through the day.
Thank you so much for your prayers! We definitely need them.
Blessings,
Elizabeth
Proverbs 20:12
Ears to hear and eyes to see - both are gifts from the Lord.
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