A friend invited me out to lunch today and we went to a nice little cafe with local and delicious food. It was definitely the highlight of today.
I slept on Josiah's floor last night. Isaac woke up about midnight. If he becomes untucked from his sheet and blanket he wakes up upset and needs some help getting tucked back in. We had a couple of fans going in our room and I get a little nervous that I won't hear Josiah if he cries so I felt better sleeping in his room.
Graham's bus came early this morning so Isaac and I drove with him to work so that I could have the car. We stopped at the library on the way home and dropped off some items that were due. We went home and I made up Josiah's feeds for 24 hours and sent an email to our nursing agency.
Isaac's cousins were with my parents today so we went over in the morning and he had fun all day. I came back home at 11:25 because Josiah had an 11:30 appointment with the dietitian. No one was home when I arrived but there was a message from the dietitian saying she was there at 11:15 and no one was there. I called and left a message to say that I had the appointment written down for 11:30 and Josiah was having a stroller ride. She said she'd come back at 12:15 at which point I was on my way to meet my friend. At 11:40 our nurse and Josiah were still not around. This has never happened before at an appointment time so I went out in the car around the neighbourhood for a few minutes and they were just reaching the driveway when I returned. Our nurse just hadn't realized that there was an appointment so I was glad there wasn't any other reason for not being there. I was also glad that Josiah was able to enjoy a stroller ride. I left my questions for the dietitian with our nurse.
The dietitian left an application form that I need to get Josiah's doctor to sign and then sign it myself and mail it away. I'm not exactly sure what's happening because we've been covered for feeding supplies through CCAC and now we're applying to something else for feeding supplies. The dietitian also brought a large box of feeding systems. I think they are the ones that we used at McMaster Hospital. I'm sure they are great but I'm afraid I don't welcome change with open arms. It's something new to think about and another large box to store somewhere.
On my way back from my lovely lunch I stopped at the pharmacy and they had what I had ordered but instead of a two week supply, it was a six day supply that will get me to Sunday because the full prescription from our doctor didn't come in. Our pharmacy isn't open on the weekends and we need to give them two days to fill prescriptions. They are a compounding pharmacy and it was one of two that were recommended to us. We can't just go to any pharmacy. So, I'm hoping the doctor faxes the form on Wednesday (along with the other fax about the other drug) and then it can be ordered so that I can hopefully pick it up on Friday.
I arrived home around 2:15 and saw the physiotherapist's car out front and then realized she was sitting in the car. It turned out that she'd been there a while and rang the door bell and called our phone but our nurse didn't hear because Josiah's room has the air conditioner on and thus we keep the door closed.
Anyway, the PT was happy with Josiah's progress. It seems to be slow but steady (she hasn't used the word slow). She's happy he can turn himself in the exersaucer (both ways) and is sitting a little better (when he wants to) and doesn't mind being on his tummy as much. She'll be on holiday for a couple of weeks so we'll see her next in mid-July.
The PT also brought a new chair for Josiah to use and he liked it right away. Tonight, we broke it. I went to a store to try to find one tonight but they didn't have any (I tried to call first but that didn't work). I think I've found one online that I can buy tomorrow to replace this one. I'm happy he'll have a new place to have fun.
The doorbell rang and there was a man with a delivery for Josiah from the place where we order medical supplies. I said I didn't ask for delivery and didn't want to pay the $10 delivery charge. He said, he'd let them know and he gave me the package. I called to ask about this and was told that when our visiting nurse put our order in, that delivery was checked off. She said that I might receive a bill in the mail and that I should contact CCAC about it. I hung up. I thought about this for a little while and then called back. I said that she knew I hadn't asked for delivery and I've never had delivery so I shouldn't receive a bill in the mail. She then said that she could get her supervisor to call CCAC. I said that would be wonderful.
I then ran out to pick up something at the store and was back just before the nurse left at 3:30 PM. Josiah had a good sleep then so I was able to focus on dinner.
Josiah was happy to see me this morning when I stood up from the floor after 6:00 AM. He's still very happy in the mornings. After I get the feed and the drugs and change his diaper, I now try to cuddle him on the chair until he makes it clear that he wants out of my arms. Then he goes back into the crib and he usually falls asleep quite quickly.
Graham had mentioned the other day that he'd had to pay more than usual at the pharmacy. This afternoon before I started dinner I found those receipts and earlier receipts. I called the pharmacy to ask about this and it appears that one drug wasn't put through our insurance for some reason even though other drugs were. We've never had to ask about this before. She was very apologetic. I will now need to find the papers to fill in for the insurance claim. We'll see if that happens.
More good news is that I received the two NG tubes that our cousin picked up at SickKids and mailed to us. I also found out from our visiting nurse that we received approval from CCAC for the NG tubes so we should be able to get them now when we need them in the future. It's nice to know there's at least one on hand for when we need it.
So, that was my day. I'm glad my parents convinced me to have a little nap this morning. Thanks so much for your prayers!
Blessings,
Elizabeth
Proverbs 25:28
A person without self-control is like a city with broken-down walls.
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