Isaac is away tonight so I thought I'd post early and spend more time with Graham. I drove with Graham to work and then picked up my mom for a shopping expedition. Shopping would be close to the bottom of my list for things to do on a day "off" but it had to be done.
Isaac's been having fun at Grandma and Grandpa's house. Josiah had a fairly good day. I can hear my dad singing to him now while he holds him in the chair.
I left a message for the dietitian this morning as we decided to skip the late night feed last night as well. She ended up dropping by while I was out and she wrote out new instructions for how to make up Josiah's feeds. Please pray that he tolerates the new amount of food and continues to grow. Once again he was very happy when he woke up this morning around 5:30 and he slept through the night. However, he was already receiving much less fluid than a healthy child his age. If he's upset or he doesn't continue to grow, I think I'll go back to feeding him at midnight but if this works it would be wonderful. I'll email the pharmacist and find out how early I can give Josiah's last medications which are currently scheduled at midnight.
We had been giving Josiah a bath every other day (the royal we) but I asked the nurse today if he would mind giving Josiah a bath every day. He's so sweaty and stinky (especially his head and hair). He sweats because he is working harder at breathing. Wow - my son works so hard to breath that he actually sweats profusely. I'm not sure if I want to process that or not. I don't think I process a lot of this. When he wakes up during the night I usually need to change the receiving blanket under him as it is damp.
I saw a mom carrying a baby today and I thought how lovely it would be to carry Josiah completely unencumbered by tubes and oxygen. And then I remind myself how lovely it is to be able to carry him at all.
Have a good night! Thanks for your prayers!
Blessings,
Elizabeth
1 Corinthians 13:4
Love is patient and kind. Love is not jealous or boastful or proud or rude. It does not demand its own way. It is not irritable, and it keeps no record of being wronged. It does not rejoice about injustice but rejoices whenever the truth wins out. Love never gives up, never loses faith, is always hopeful, and endures through every circumstance.
The pictures that you post are beautiful! Thank you for sharing your precious times together and your amazing faith!
ReplyDeleteGod's peace be with you,
Gail
Praise ye the LORD. O give thanks unto the LORD; for He is good: for His mercy endureth for ever. Psalm 106 v 1.
ReplyDeleteRejoicing in hope; patient in tribulation; continuing instant in prayer. Romans 12 v 12.
Wait on the Lord: be of good courage, and He shall strengthen thine heart: wait, I say on the LORD. Psalm 27 v 14.
Jesus, friend of little children,
Be a friend to me,
Take my hand and ever keep me
Close to thee.
Teach me how to grow in goodness,
Daily as I grow,
Thou hast been a child, and surely
Thou dost know.
Never leave me, nor forsake me,
Ever be my friend;
For I need thee, from life’s dawning
To its end.
Hello Elizabeth and Graham.
You and your darling sons are often in my thoughts and prayers even though I have not let you know recently.
Thank you for all the photographs. Today’s close up of Isaac and Josiah holding hands is endearing. I couldn’t resist tickling Josiah’s feet on the screen in the close up photo of one foot crossed over the other and imagining him giggling. Yesterday, Sunday’s photograph of you all together as a family is absolutely beautiful. You radiate love and gentle warmth. Josiah suits the shape and colour of his hat. In the close up photo of him, his hat is the same colour as his lovely eyes. Thursday’s photograph of gorgeous Josiah in his green t-shirt looking upwards in his element in his chair with his colourful toys and friends is delightful.
Glad to know that Josiah has stopped his midnight feasts. His great grandmother Emily (mother of grandpa L’s and me) said when the hands of the clock where up together at 12 o’clock (mid day), our hands should be up in prayer and gratitude to God. In Jesus’ name and in the power of the Holy Spirit, may God our Heavenly Father grant that you all go to sleep earlier, sleep safely through the night and continue to wake up refreshed, nourished and blessed and be a blessing. Gracious Heavenly Father please grant Josiah Nathanael Gabriel Faulkner ease of breathing to such an extent that it will become effortless and he will thrive and progress in all his successful developments. Thanks and praise to you God for all your help,guidance,strength and comfort and for bringing all the kind people into Josiah and his family’s life.
Love and prayers from your auntie Julia.
We have the faith to believe in carrying Josiah without tubes etc We have also believed and are seeing God's hand upon Josiah's life each day. We praise God for His miracles in touching Josiah for each new day. He will soon have a birthday and God gives us an abundance of miracles for which we have the opportunity to praise and thank Him all day long. We are walking and trusting and we continue to ask God to 'erase' and take care of the scar tissue; to breathe lots of oxygen into Josiah's lungs and to take care of the heart. God is SO able and this is not difficult for Him. To Him be our ongoing glory, honour, faith and trust. Much love.
ReplyDeleteThese pictures are so precious! We're praying for you guys.
ReplyDeleteLove Amanda and Jason